Take down the tinsel!

Hello all,


The Christmas decorations have come down in room 527, and we're getting ready for the New Year's decorations. Troy is in good spirits and so far, he's reacting well to the new chemotherapy. All of the counts and proteins and levels are looking good. Much like many of the airlines, he's in a holding pattern until more information comes in. Thanks for all of the cards and emails and positive energy! It really helps him to look forward to next year.

Happy New Year!
Helen

Dec. 22 - Roll Out!

Troy is out of the ICU and back on the 5th floor!!! Please send holiday wishes to room 527.

Email Troy at http://www.nghs.com/General%20Pages/Contact_patient.asp


Happy Holidays!

Dec. 21 - Bump in the road

Unfortunately, Troy is back in the hospital. He was complaining of lower back pain all this week and some tests have shown an increase in protein (of the plasma cells) and calcium levels. Although all of his other levels are doing well, these indicate that the MM is on the march again.

They checked him into the ICU last night just to keep a careful eye on his calcium and blood pressure. He has stayed there all day today and will be released to the 5th floor once his blood pressure comes down to acceptable levels - hopefully he will be there soon. Even though he just had his dialysis port removed Tuesday, they have had to do two more sessions to get the calcium out of his body (but hopefully it won't continue). Both his calcium level (from 14 to 7) and blood pressure have been coming down throughout the day.

This development has resulted in a new chemo regiment which will hopefully take a "bite outta crime" and cut back the aggressive MM. Furthermore, the doctors are considering getting Troy to transplant a lot sooner than expected. However, this is a complicated process and there are many variables to consider before exact dates and plans can be made. Unfortunately, it looks like he will be in the hospital for Christmas.

On a positive note, Troy is in MUCH better shape than he was last time he was in the ICU. The calcium made him a little disoriented, but he is clearer headed now and slept most of the day. He sat up this evening and fed himself dinner - which is a good indication that he is feeling better!

Please keep him and his family in your thoughts and prayers this holiday season.

Thursday, December 6

Hey everyone!!!
This is Troy - I wanted to touch base and let you all know that I'm doing well. It's been a good week and I'm feeling really great right now. I did meet with the doctors that are doing the next steps of the procedure and I was very impressed and felt comfortable with the treatment they have come up with. It's going to be a long road, but we're going to make it.
If you are interested in visiting please get in touch with me and I can let you know if it is a safe time to come. I would love to see or hear from you all!
Thank you for your thoughts and prayers through this and please keep them coming.

-Troy

Dec. 5 - Next Steps

Troy met with the transplant doctor at Northside Hospital this morning and it went well. He discussed the treatment options and time frames available to Troy.

I think Troy felt good about the visit, the people he met, and the professionalism of the transplant group.

It appears the next step is to continue the chemo treatments as planned (he started his third round on Monday) until all his levels get to a low enough point. Then it becomes a game of a "wait and see."

Troy is in great spirits and seems to be doing very well. He is smiling and laughing more and is taking everything in stride. I know he really appreciates all of your support and loves hearing from you. If you want to visit, contact him via phone or email and he can tell you if the time is right. Sending pictures is also great because I know Troy misses "seeing" everyone.

More to come as it develops.

Update for today...

Hey everyone!
Sorry that I haven't posted in awhile - I will try to do better ;-)
I've been home for a little over week now and it feels great. Reports from the doctors have been good. I don't have to go to dialysis anymore and they released
my 'diet' and told me I could eat what I want. I liked that news!
If anyone needs to send me anything - please mail it to the following address:
5783 Newberry Point Drive
Flowery Branch, GA 30542

Next week is going to be busy. We are meeting with some of the doctors at Northside on Wednesday to see what our next steps are going to be.

Thank you all for you thoughts and prayers during this time!! They have really been felt and appreciated! Keep them going!!!

-Troy

P'ville supports Troy!

Nov. 23 - "Take me home..."

"Country road....
To the place....
I belong!...."

With a great WBC (2.9) and low creatinine levels (3.ish), Troy was released to go home today!!!! Furthermore, he didn't have to have dialysis today, and tests indicate that his kidneys may be coming back to full strength soon!

His voice is the strongest I have heard in in 2 months! Troy is kickin' butt and kickin' cancer y'all!

He didn't make it home in time for Thanksgiving...but he got there as soon as he could.

I think we are all thankful for that.

Nov. 19- Happy Turkey Day! (A little early)

Happy Thanksgiving!
Troy was in good spirits Sunday evening. His white blood cell count is keeping him in the hospital for now, (it's still a little low and has been slow in coming up), but he has been told by Dr. K. that he will be home for Thanksgiving. Troy is still on dialysis, and is willing his kidneys to continue to heal. He's eaten so many turkey dishes (it was very similar to Forrest Gump when he started listing all of the ways that the cafeteria used turkey) that he's hoping for ham on Thursday at home. (Please.)

I know that I am thankful to know Troy, and thankful that so many people are wishing only for the best for him. I also know that I am thankful for his family, who have dealt with a tremendous blow with strength, grace and humor. I know that I am thankful for his friends who have made the trek up I-985 to lift his spirits or sent a card or email or gift. I'm thankful for all of students and their families who have shown him how many lives that he has touched (and will continue to inspire). I'm thankful for the support of his adminstration at the Grove, and the support of the faculties there and at PMS. And I'm especially thankful for his doctors, nurses, and all of the staff at Northeast Georgia Medical Center who have taken such good care of him.

Happy Thanksgiving y'all
Helen

Nov. 15 - Cross your fingers

Troy's creatinine levels dropped to 3.2 today....and if they stay down....he won't have to have dialysis tomorrow!!! (I guess the magic number is anything lower than 4.0)

He was still pretty weak today, although he said he was stronger than yesterday. For instance, his voice was much stronger today. I assume they will keep him in the hospital over the weekend just to protect his immune system - but they assured us he would be home for Thanksgiving!

Keep your fingers crossed!

Nov. 14 - Flowin'!

Well, it sounds like things are progressing for Mr. Henson. According to his mom:

"White count was still 0.3 today. Hemoglobin was still good at 9.9 and Dr. Kallab said his Creatinine (the kidney protein) is hovering between 4 and 5 which is really good and he was excited about his output the last several days (which was over 2,000 ccs today). The Creatinine was 9 Monday a week ago after no dialysis over the weekend and this Monday it was 5.9, so that is a good sign that the kidney function is improving."

They hope he will be home soon which I'm sure will improve his morale as well as increase his strength and kidney function. The second round of chemo will be done soon as well.

Unfortunately, Troy's voice is still very week, but maybe it will also improve when he gets home - it did last time!

Keep the positive energy flowing to his kidneys (no pun intended...well, maybe)!

Nov. 10 - Black Out!

Dictated from Troy's hospital bed:

"Hello everyone, this is Troy! I really appreciate all of your thoughts, prayers, gifts, cards, and emails over the past month...It has made getting through difficult times easier. Having the support of friends, family, students, and colleagues has been absolutely amazing during this time. Each day has brought new challenges and also brought answers and progress. Physically I'm feeling well, but I know it's going to take time to continue through this process. Your thoughts and prayers will still be appreciated. I would love to respond to all of your emails, but I just don't have the energy to get to everybody - but I'll do what I can."

All signs are good, but his white blood count is 2.2 (which is a little low, but ok). Troy seems to be in good spirits tonight.

I guess the Black Out helped....Go DAWGS!!!

Nov. 9 - On the Mend

They replaced Troy's dialysis port with a more temporary one today. Things seemed to have gone well and he kept his temperature down.

They want to keep him in the hospital this weekend to monitor the new port to make sure everything is ok. He is also losing his voice again. No one seems to know what is going on with his voice although Troy hypothesizes that it has something to do with the chemo. I don't know...I give that a Henson Hurumph!

Tomorrow will be interesting as Troy's devotion will be divided...Georgia plays Auburn!

Nov. 8 - Another Round Please!

Troy kept his temperature down today! They took cultures of the area around his dialysis port today, but won't have results until tomorrow. However, the nurses said it is common for that area to get infected (remember it bled a lot when he first got it - plus it has been there for almost a month). Hopefully that was the cause of the infection and he will be able to go home again soon. I told him it was like going to work...drive to the hospital during the week to fight cancer, and spend the weekends at home!

They started the second round of chemo today and hopefully this time it will be a little easier on him.

Nov. 7 - The Waiting Game

They took out Troy's dialysis port today (hoping it was the cause of the infection), but they won't know more about the cause until tomorrow.

While he is fine and doing better, I know he HATES being in the hospital. Let's all hope he gets out soon.

Here is an image of what the shirts will look like. I think the first orders will be ready Friday and we will work to get them out to everyone ASAP. Don't fret, we will take a second order soon.

Nov. 6-Back in the Saddle Again

It's time to play good news/bad news.
Bad news first. A minor setback. Troy went in for dialysis yesterday, and the staff there noticed that he was running a fever, which is an indicator of infection. He went in to the emergency room, and at 3:30 in the morning, he was admitted back into the 5th floor of NGHS. The blood culture came back positive for infection, at the 48 hours point, we'll know exactly where the bad stuff is. Fingers crossed, he'll be able to go home Wednesday afternoon. (Troy's mom and I started counting the number of rooms that he's been in. I think he's up to nine different rooms since the end of July. )
Good news time! (Yay!) Troy's voice is sooooo much stronger. To me, he sounds 99% back to normal. He's also getting feisty again, and definitely wants to get back home and out of the hospital.
Thanks again for all of the positive thoughts and good energy.
-Helen

Nov. 2 - Home Sweet Home

Troy's WBC was 2.2 today! So, after exactly one month (Oct. 2 - Nov. 2), Troy went home tonight!!!!!!!!!!!!!!

I spoke with him this evening and he said "you have no idea how nice it was to smell fresh air and be at home!"

So, I think we can all sleep a little better tonight. I'm effectively "signing off" and will get back with you when something new develops (visitation, etc.).

Thanks for your support over the past month, I know Troy and his family really appreciate it.

Nov. 1

WBC 1.2!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Troy had a pretty good day today. If his voice was at 25% the past month, I would say it was at 50% today. And, of course, his WBC is significantly better. So, I would say that he will be home VERY soon.

Email: I would suggest stopping emails to the hospital and begin emailing Troy directly. Troy wanted me to mention he may not get back to you immediately (or he may not get back to you at all), because his inbox will probably get flooded. (I don't want to publish his email online in order to protect his privacy.)

Visitation: I'm sure it will take a few days for him and his family to get settled, so please be patient as they figure out how to manage the visitation process.

Food/Gifts: Troy's immune system is still impaired, so please don't send any flowers or food. Cards and emails are probably the best things right now.

Thanks

Oct. 31

Troy's WBC almost doubled today! His dialysis machine broke down halfway through treatment, so he had to start all over - a total of 6 hours! The worst part is that he can't eat while on the machine, so his lunch just sat there - taunting him. He still has some minor pain from the shingles - all of this left Troy to describe today as "long."

His voice was a little stronger today and he seemed to be doing well - tired of the hospital - but well.

p.s. Jack, your email bounced back - could you resend your address?

Oct. 30

Troy had an eventful and emotional day, but he is doing well and hopes to be out soon.

Oct. 30 - The Rash that Keeps on Giving

Remember that rash I told you about - well, it turns out it is shingles. I have read that this is a common "side effect" of an impaired immune system - so I don't think there is any need to be alarmed.

However, they did move him to a negative pressure room that removes more air than it lets in. This way, his air/germs are not circulated throughout the rest of the hospital - pretty cool stuff! I believe it is room 529.

Please - NO VISITORS. The room is much smaller and we now have to put on special masks, gloves, and gowns to see him. Furthermore, although shingles is more annoying than anything else, you can contract chickenpox from it if you haven't had chickenpox before.

The good news is that he is feeling ok and his white blood cell count went up to .o5 today - so, he is heading in the right direction.

Thanks,
Todd

Team Troy

Wow! I just got through reading all of your emails - THANKS FOR THE SUPPORT! A few things:

1. Unfortunately, I did NOT create this blog - that honor goes to Helen Saile (I just post these updates)

2. T-shirts. I got lost on exactly who is coordinating all of this (an interesting combination of his brother, sister-in-law, a cousin, and a teacher at P'ville) but if you want one, you need to act fast! The shirt has something to do with helping Troy Blast Cancer, it will include some sort of Tuba or musical image, I think it is primarily red and black (Go DAWGS!), and it will cost $10. All proceeds/profits ($4-$5) will go to Troy to help cover the mounting medical bills. There might be someone at your school (P'ville, Norcross and PGMS -Kimberly?) organizing orders, but if there is not, send me an email with quantity and sizes by THURSDAY so I can get them to the appropriate person.

3. I will get back to each of you about your various talents/contributions to this fight - just give me a few days to get through this week's classes. It sounds like many of you have already organized some efforts, and that is AWESOME! I will be finding ways to help him and the familly utilize those efforts soon.

4. Visitation. Troy is still in the "red zone" and can't really accept visitors just yet. We hope he will be cleared soon - I will let you know as soon as I get the green light.

5. Mail. I'm not sure what to tell you about a mailing address just yet. I stop by his house every few days to pick up mail and will get it to him - so maybe using his home address is best (although I do not want to publish it on the web).

6. Thanks! This is incredible, I just wish I knew more of you so I could put names with faces!

Todd

Oct. 29 - The Back and Forth

Good news: Troy's white blood cell count went up to .04 today. I was told tonight that once he "turns the corner" the counts will severely increase (kind of like exponents). He had a stronger voice tonight, and he did some walking this morning.

Not so good news: He was tired from dialysis. His phosphorus level is slightly elevated, so they had to give him fluids to "flush it out." He has also developed a rash although it doesn't sound like anyone is really concerned about it - probably more irritating than anything else.

He mentioned that he is tired of "something new" developing everyday. Unfortunately, I think this is just part of the process. I told him to not get discouraged and to keep the big picture in mind. I think more than anything, he just needs a change of scenery - hopefully he will be out soon!

Please keep sending emails and cards. It would be great to include stories of things going on in your lives or events around your neck of the woods. Maybe your stories can help transport him to somewhere else besides the hospital.

Todd

Oct. 28 - Small Steps

Troy had another good day. His white blood cell count finally started to increase (from .o2 to .o3)! However, I understand that a "normal" level is 4.0, so we have a way to go. I don't think he needs this number to be cleared of neutropenic status, but I guess that is what we are shooting for ultimately.

He took a few major walks today (to the end of the hallway and back) without using the side rails and he generally seemed in good spirits. He also mentioned that he didn't have any back pain and the doctor called it some sort of muscular spasm since he did not show anything else in any other tests.

(pause...I can't seem to write tonight because my brain is not functioning properly. I hope you can at least understand the basic events of the day. sorry!)

I had a very enlightening conversation with a myeloma survivor tonight. She told me of her experiences; the chemo, the transplants, the nausea, the triumphs and the tears. Maybe I had blinders on, or maybe I just wasn't ready to accept it, but we are in it for the long haul. Speaking with Kathy really got me thinking, especially about how best to support Troy through this difficult time.

So, I have decided to get more informed and more organized. There are so many of you who said you would be willing to help and it is my hope to answer your call. I'm not sure how it is all going to work out, but I envision some sort of "support network" where people can sign up to help. I'll get more organized as things develop, but know that I'm working on it.

For starters, I have caught wind of the Pickneyville/Norcross t-shirt idea. I think this is great and hope that someone from that group will contact me with your thoughts. For instance, is there a way to make them available to anyone in Troy's support network? Email me. todd_snead@msn.com

I know this is kind of weird, but I don't know many of you and I'm not exactly sure how to communicate with you except through this blog. So please, email me your thoughts and/or any ideas about how you might want to be a part of Troy's support system and I will begin to organize them as they come.

Thanks again for reading, responding, and supporting. Together we can help Troy kick cancer!

Todd

Oct. 27 - Sic 'em!

Well, Troy must have ESPN...I mean...ESP with the Dawgs in Jacksonville because he had a strong day today.

His pain is almost nonexistent and he walked twice today! Maybe it had something to do with his Memaw's chicken salad and homemade pound cake (yes, I got to sample it!).

We are still waiting for his white blood cell count to come up and for his kidneys to produce 2 liters of output, but I think he is on the right track.

The best part about days like today is seeing him in good spirits, seeing him smile, and catching him laughing a little here and there. It makes you forget he's sick and it restores your hope, plus...it just feels good.

Oh and...sorry Florida fans,
Todd

Oct. 26 - Catching some zzzzzzs

Troy was sleeping hard when I went to visit today; however, he awoke for a little bit and I got to ask him about his day. It sounds like his white blood cells are still down, but that his pain is easing away. He told me he was feeling better and trying to only use pain medication when needed.

Hopefully the Dawgs (all the Dawgs) will rally tomorrow.

Todd

Oct. 25 - Roller Coaster

Well, it's not a kidney stone; furthermore, it's not a tumor! However, the doctors still don't know exactly what is happening. Maybe it's just that wonderful cocktail of drugs in his system!

The further good news is that Troy was able to keep his pain at bay all day and he appeared to have gotten some much needed rest. He even sat up for about an hour. Troy was in much better spirits tonight - and that makes us all feel much better.

Thanks for your support. Sorry, sometimes I'm not as strong as I want to be. What's that saying, "It takes a village...."

Todd

Oct. 24 - Stormy weather

Troy had a rough night last night and today. He awoke in the middle of the night with an intense pain on his right side near his rib cage. They also found blood in his urine. They gave him morphine and some other anxiety drug today to ease the pain and did a CT scan.

We don't know about the results of any of the tests, but it could possibly be a kidney stone (the symptoms seem to suggest this). Hopefully we will know tomorrow.

Sorry, I wish I had something witty or cute to say, but I don't.

Todd

Oct. 23 - Maxin' and relaxin'

Well...as much as one can do in a hospital bed. Today was another good day for Troy, but then again any day without dialysis is a good day. They hope to keep him on a regular dialysis schedule of MWF, which is down from the past few weeks.

They are still giving him shots to increase the white blood cell count and hope to start seeing results by tomorrow. If that progresses, he should be at his parents house by the weekend!

Although I don't have the most accurate information (mainly because I don't see the doctors in the morning), it sounds like he is finishing or has finished his first round of chemo. From what I could gather from Troy, they will start the second round on Monday. (I'm beginning to wonder how he made it through three degrees because he's not so good at keeping notes!)

Hard to believe he has been in the hospital for THREE WEEKS!

Todd

Oct. 22 - Seeing the Light

Troy had another productive day today. His output was great, his appetite strong, and he did some more walking. His white blood cells hit an all time low of .3 today, but not to worry...they gave him a shot to increase the production of those little lifesavers.

They decided not to inspect his throat until he gets out of the neutropenic stage (mainly because he has to go to an external office for the examination). So, his voice is still weak and no one knows why; therefore, email is still the best way to communicate with him (please don't try to call the room).

As far as the light is concerned...they told him today that he is doing well enough to be discharged from the hospital! However, they won't let him go until his white blood cell count gets back up. From what I can tell, this should be within the week! I know many of you want to see him; just hang on a few more days.

I think today was an emotional day for Troy - he spoke of wanting to be "finished." And who could blame him? However, as we all know, this will be a journey comprised of many steps. I have found all I can do is support him on his journey, be there when he stumbles, and celebrate every corner he turns.

I know, and Troy knows, that you all feel the same way and when I told him he had so many people pulling for him he said, "I know, I can feel it."

Todd

Oct. 21 - Easy Silence

Yesterday was a productive, yet restful day for Mr. Henson.

He went on 3 walks and produced over 350 ccs of output! I would assume that means his kidneys are coming back, but again I am no doctor. He also got a lot of much needed rest by sleeping off and on throughout the day.

Today a throat specialist is supposed to examine his vocal chords and see why his voice is still weak - let's hope for the best!

Todd

Oct. 20 - Rally

Troy had another great day today. He kept his O2 levels at 95% without support and took two walks today! He also produced over 100 ccs of output and his appetite has improved to the point where he can clean his plate!

He is getting stronger everyday!

Todd

Oct. 19 - Fresh Air...kind of

They removed Troy's O2 tube today! He wasn't plugged into anything when I saw him this evening. His walking is improving, he's breathing a little deeper, he peed 50 ccs (twice as much as it was a couple of days ago), and he says he is feeling great! Troy even got shaved and cleaned up today. He also mentioned his appetite and thirst coming on stronger - I feel all of these are good signs.

However, his white blood cell count is still down and the doctors are still concerned about how aggressive the cancer has been. He must get off dialysis before transplant can be an option, and I think he is making strides in that direction. I know I'm not a doctor, but I believe the more he drinks and moves/walks/sits up, the better his kidneys will work.

I think he gets a little discouraged knowing that he is feeling better, but still in the hospital - I'm sure it is a very frustrating feeling. He needs help celebrating the small things to make it from day to day. Please keep the motivational and inspirational messages coming - every breath, cc, and step is a victory.

Todd

Oct. 18 - The Boy in the Bubble

First of all, some of you were wondering about the email address for the hospital. Click on the link below and at the bottom you will see a link that allows you to email Troy directly. When you fill out the form, say that Troy is in room 508 and they will get it delivered to him. He has his Blackberry in the room, but I don't think he checks or uses it much - so the hospital email is more reliable.

http://www.nghs.com/General%20Pages/Contact_patient.asp

Now for the update. I think Troy was doing GREAT today! Sure, he had dialysis again today. Sure, he still has a little bit of fluid on his lungs. Sure, he has almost no white blood cells - but he was the strongest I have seen him yet!

He is still doing his breathing exercises and they are getting a little bit stronger and much more steady and even (his tuba professor would be so proud). He also walked with a cane today (as opposed to the walker he had been using)! Each day I notice more and more of his personality coming back as well as his more finite motor skills - so I'd give Troy a big A+ Mr. President - can he graduate now?! (heehee)

I got no word about when he would be cleared from this neutropenic status, but rest assured I will let you know when he can have visitors ASAP.

Todd
p.s. I hope there aren't any English teachers reading this - I save my grammar and editing skills for my research papers (shhhh...don't tell the President)

Oct. 18 - Visitor Restrictions

Troy is now classified neutropenic, which means his white blood cells have bottomed out. This is a natural result of the chemotherapy and they will go back up soon. However, this is a critical time for his immune system. They have moved him to room 508 (it has an observation area) and have restricted visitation.

The nurses are asking that no one except his immediate family visit him at this time; furthermore, it is critical that we keep any kind of cold or disease away from him until his counts turn around. Also, they have removed all flowers and fruits from his room - so please just send emails and positive thoughts.

Again, this sounds worse than it actually is. His mom said his voice was even stronger today and the doctors are saying that things are going well. They are doing dialysis again today to get some more fluid off his lungs.

I don't know how long he will be in this condition, but I will keep you posted as I learn things.

Thanks,
Todd

Oct. 17 - A Great Day

Troy was in good spirits today. He did some walking, peeing, dialysising, bleeding, eating, and resting. His voice is getting stronger, and I would say was the best I had heard it (although he still saves it by whispering).

Nothing terribly exciting to report tonight, just that he is getting better!

Todd

Oct. 16 - Strength

I think Troy had a rough morning. His mom said that he was bleeding a lot out of his chest-port-catheter-IV-hookup-thing. This was due to blood thinners (to keep blood clots down)...so, they stopped the blood thinners and gave him some platelets. He also had to have an impromptu dialysis session this morning because of some extra fluid in his feet. Regardless, this all seemed to have helped. He was much more comfortable this evening than last.

He also walked some more today and began a few PT exercises for his legs. Given all this activity, he was still able to increase his "output" (of, well...you know) from 20 ccs yesterday to 25ccs today! AND....his plasma count is remaining "low" in the 2300 range (down from 9000 if you remember)!

So, I would have to say that today was a good day overall. Unfortunately, I think I did jinx the discharge date - they want to keep him in the hospital for a while until all his functions are better.

Sleep well,
Todd

Oct. 15 - Many Thanks

I think it would be safe to say that Troy had a painful day today. He had another 4-hour dialysis session in which he was sitting up the entire time. This somehow hurt his lower back and caused him a lot of pain later this evening. Again, this seems to be part of the "good day, bad day" trend. He doesn't have dialysis tomorrow, so hopefully he will be feeling better (a.k.a. it would probably be a good day to visit).

His white blood cell count is beginning to lower, which is a sign the chemo is working. This will eventually progress to the point where he will be very susceptible to infection and will probably unfold over the next week or two. I am told this is a natural occurrence - so it is not as bad as it sounds.

However, it means that he will have to restrict any plants or fruits in his environment as well as germs. So, please do not bring any flowers, plants, or fresh fruit because we will eventually have to remove them. Also, please be extremely mindful of your own health. As much as you want to see him, or as much as he would want to see you - check your sniffles at the door.

I know I sound like a broken record, but he hopes to be out of here soon - I would say the date, but I don't want to jinx it!

Finally, on behalf of Troy, his family, and myself, I would like to thank the Pinckneyville and Norcross communities for their generous financial support. I think I speak for Troy in saying, "You really shouldn't have done that." I am completely amazed by your generosity and know Troy has been profoundly touched by all of your support over the past two weeks. As Troy would say, "You guys are awesome!" Many, Many, Many thanks for all that you done and continue to do for him.

Sincerely,
Todd
p.s. It is sometimes difficult to write this blog because I want to make sure you all get good information, and I want to protect his health and recovery as best I can. So please, do not take offense or think I am "short" because of the restrictions I post here. I am just trying to follow the doctor's (or mother's) orders and attempting to do what I hope is best for Troy. I guess you could always write me hate mail if you needed - I can handle it (HAHA)!

Oct. 14 - Big Day

Troy had a big day today. He did much more sitting up and walking this morning and was greeted by a plethora of visitors. While it hasn't been much, he used the restroom again today. They also turned down his O2, and we hope to have him off it in the coming days.

He really appreciated all the great visitors he had today. It keeps him alert and also helps the time pass. By the end of the night he was exhausted and fell fast asleep (I guess I'm not very exciting - HAHA).

A few things to keep in mind before you visit:

1. Please "sanitize" your hands with the little dispenser on the wall as you enter the room - his immune system is weak and we don't want to make it any harder for him to recover.

2. He is scheduled to have dialysis again tomorrow morning, so he may be tired mid-day and early afternoon. As a general rule, I would say it is best to visit anytime between 3 and 9.

3. Many of you have asked what to bring (food, games, etc.) - I really think what he needs most is good friends with positive smiles and good stories to make him laugh. Oh, and a razor...the boy is gettin' hairy!

Here is the link for directions to the hospital http://www.nghs.com/General%20Pages/Maps.asp Troy is in room 541.

Again, thanks for everything that everyone is doing. We all hope to have him out of the hospital soon so he can really begin to heal at home.

Todd

Oct. 13 - GO DAWGS!

Troy did really well today. Not only did he sit up to eat again, but he actually walked down the hall without a walker (although he did have to lean on his nurse)!

And...for the first time in 5 days....HE PEED! TWICE!!! That is good news for his kidneys! They also turned down his oxygen and will hopefully have him off it in the next day or so.

He is in good spirits, but definitely ready to get home to a more comfortable environment.

Maybe it helped that Georgia won tonight!?!?

Todd

Oct. 12 - The Little Things

Troy had a pretty eventful day today. He awoke to a healthy breakfast where he ate two bowls of cereal and some fruit. They got him up in a wheel chair today and had him sit up for a 4-hour dialysis session. This is an "improvement" from bringing the machine to him in the room. Please keep sending positive energy to his kidneys...it would be great if he could use his license to pee freely!

The dialysis kind of wiped him out, and he rested most of the afternoon. He is more autonomous and is consistently feeding himself at meals.

As for the the little things; some levels were up, some were down and it is hard to decide what is good news, what is bad, and what is just news. As a good friend told me today, we have to keep looking at the big picture and not get bogged down in the "day to day."

So, while I would love to translate all the details of this recovery, I must concede that it is beyond my realm of full understanding. I, like many before me, finally learned today that I am not a doctor - if they tell me things are promising, then I have to trust them. Cancer, chemotherapy, stem cell transplants and all the stuff in between is really complicated, but the simple truth is that Troy seems to fight hard everyday. Today was no exception.

Todd

Oct. 11 - Rainbows and Sunshine

Troy's new room is quite nice; with spacious windows and plenty of room for visitors! Today was a great day - not only did he move the the 5th floor, but he did a good deal of walking as well. AND....Mama Henson finally went home to get some MUCH needed sleep in her own bed. Bless that woman - now I know where Troy gets his strength and determination.

Troy is also "waking up" and beginning to ask more specific questions about the past week (because his brain seems to have blocked it out), his condition, and his treatment. His voice is still weak, but he is able to carry on steady conversations. He didn't have dialysis today, but it sounds like it might be process he will have to endure for awhile.

He was telling me about all the great things you have said in your emails, and he really appreciates all of your kind words. I think his biggest frustration right now is being stuck in the same place all day with nothing to do - ya, he's feeling better!

If all goes well, he'll be out of the hospital soon.

I hope this post finds you all happy and well.
Todd

Oct. 11 - Movin' on up!

I haven't been to the hospital yet, but I hear from Mama Henson that Troy has moved to room 541!!! Plus, they shaved him (to some extent) and removed his catheter - I guess you could say he has a license to pee! (Sorry if that is gross, but you learn to celebrate small victories.)

I'll get you more information later tonight.

Todd

Oct. 10 - A Good Day

I know I sound like a broken record, but Troy was even better today. He is off his blood pressure medication and seems to be doing fine. They did dialysis again today, but also gave him two units of blood - I guess to "fill him up."

He ate almost an entire lunch and fed himself (a major stepping stone) a good dinner of grilled cheese and jello! His voice was much stronger tonight, but still a little raspy.

He has gotten into the habit of setting small goals to get him through the days - two of which he accomplished today. The goals for tomorrow are to get moved to the 5th floor, sit up in the bed, and walk.

He did ask that the visitation hours be limited to the evening. Apparently most of his tests are done in the morning and he uses the time in between tests to catch up on his rest. Please pass this along to others who don't read this blog.

Sorry I don't have any specific information on plasma or protein levels, but I think this is just that time when all the technical stuff is up in the air. If his spirit is any indication of his health - I would have to say that Troy is well on the road to recovery!

Thanks,
Todd

Update for Oct. 9 - Mixed Review

Hello all,

Well, there are mixed reviews about Troy's progress today. His blood pressure was low last night and problematic this morning...so he didn't get to walk. Furthermore, they decided to keep him in the step-down unit until tomorrow. If he responds to the blood pressure medication, and all of his levels are ok, they will move him to the 5th floor tomorrow afternoon. If not, they will have to put him on a stronger blood pressure drug which will land him back in the ICU - so, keep your fingers crossed!

On a good note, he was much stronger today. He was tossing and turning in the bed and a lot more alert and talkative tonight. He was finally able to catch up on all the emails everyone has sent and seems to be fighting as hard as he can. This multiple myeloma is stubborn!

Keep the positive energy coming - it's paying off!

Todd

The facts and just facts.....

Hello all,
So many of you have asked about our boy Troy that we've created a blog for him to keep you updated on his progress. So here's the history. Plus, I feel like a dirty spammer. And I'm sure that some of the email filters have blocked me.
In July, Troy had some back pain. He went to his doctor who found a plasmacytoma on his L-1 verterbrae. It was removed, he started radiation treatment, life went on. The official diagnosis is myeloma, which a cancer of the plasma cells in his blood. It is a treatable, but not yet curable disease.
So Troy recovered from the surgery, and had the great and wise Wanda Moates as his long-term substitute at Piney Grove Middle School. He returned to work on September 17. This past week he thought that he was run-down from school, and stayed home. Tuesday, he went into Northeast Georgia Medical Center, where the doctors found that the myeloma had returned, and rather agressively. He started to have difficulty breathing, his calcium levels were through the roof, and his kidneys were not working well. Thus, he was whisked off to the ICU. He started dialysis, and plasmapheresis, which is where the plasma is removed from the blood, and replaced with a vitamin enriched supplement. (It's like a human oil change and transmission flush. ) He also started chemotherapy.
Sunday, he was doing so much better that he is now in the Intermediate Care Unit, which is a step down from ICU. He's hoping to be in a regular room soon.
Troy can receive emails through the hospital and some of have already sent them.

http://www.nghs.com/General%20Pages/Contact_patient.asp

I know that you all want to come and visit, and he wants to say hi too. We ask you to limit your visits to 8-2, and 7-9 PM. (The afternoons are tiring for him. ) And drink your orange juice before you come, so that you're healthy.
Right now, he is in room 202. And snoring away.

-Helen